Direct observation of prognosis communication in palliative care: A descriptive study

Robert Gramling, Sally A. Norton, Susan Ladwig, Maureen Metzger, Jane Deluca, David J Gramling, Daniel Schatz, Ronald Epstein, Timothy Quill, Stewart Alexander

Research output: Contribution to journalArticle

20 Citations (Scopus)

Abstract

Context: Palliative care (PC) consultations result in improved patient understanding of prognosis and better quality of life, yet the content and processes of prognosis communication during PC consultations remain unknown. Objectives: To describe prognosis communication during PC consultation with seriously ill hospitalized patients. Methods: We audio recorded 71 sequential inpatient PC consultations (initial visit) with seriously ill patients and their families who were referred for "goals of care" clarification or help with "end-of-life decision making." Conversations were coded using reliable methods and we then linked conversation codes to clinical record and clinician interview data. Results: Ninety-three percent of consultations contained prognosis communication. Participants communicated prognoses regarding quality of life more frequently than survival; focused prognosis estimates on the unique patient more frequently than on a general population; and framed prognosis using pessimistic cues more frequently than optimistic ones. Prognoses were more commonly spoken by PC clinicians than by patients/families. The following two factors demonstrated an association with the rate of prognostic communication and with the pessimistic framing of that information: whether the patient, family, or both participated in the conversation, and shorter expected survival (as estimated by the attending physician). Conclusion: Prognoses are routinely communicated in PC consultations with hospitalized patients and their families. The rate and characteristics of prognosis communication differ based on the length of time the patient is expected to live.

Original languageEnglish (US)
Pages (from-to)202-212
Number of pages11
JournalJournal of Pain and Symptom Management
Volume45
Issue number2
DOIs
StatePublished - Feb 2013

Fingerprint

Palliative Care
Communication
Observation
Referral and Consultation
Quality of Life
Patient Care Planning
Survival
Cues
Inpatients
Decision Making
Interviews
Physicians

Keywords

  • communication
  • decision making
  • end of life
  • palliative care
  • prognosis
  • Prognostication

ASJC Scopus subject areas

  • Anesthesiology and Pain Medicine
  • Clinical Neurology
  • Nursing(all)

Cite this

Direct observation of prognosis communication in palliative care : A descriptive study. / Gramling, Robert; Norton, Sally A.; Ladwig, Susan; Metzger, Maureen; Deluca, Jane; Gramling, David J; Schatz, Daniel; Epstein, Ronald; Quill, Timothy; Alexander, Stewart.

In: Journal of Pain and Symptom Management, Vol. 45, No. 2, 02.2013, p. 202-212.

Research output: Contribution to journalArticle

Gramling, R, Norton, SA, Ladwig, S, Metzger, M, Deluca, J, Gramling, DJ, Schatz, D, Epstein, R, Quill, T & Alexander, S 2013, 'Direct observation of prognosis communication in palliative care: A descriptive study', Journal of Pain and Symptom Management, vol. 45, no. 2, pp. 202-212. https://doi.org/10.1016/j.jpainsymman.2012.02.004
Gramling, Robert ; Norton, Sally A. ; Ladwig, Susan ; Metzger, Maureen ; Deluca, Jane ; Gramling, David J ; Schatz, Daniel ; Epstein, Ronald ; Quill, Timothy ; Alexander, Stewart. / Direct observation of prognosis communication in palliative care : A descriptive study. In: Journal of Pain and Symptom Management. 2013 ; Vol. 45, No. 2. pp. 202-212.
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