Felt and enacted stigma in elderly persons with epilepsy: A qualitative approach

Research output: Contribution to journalArticle

10 Scopus citations

Abstract

Stigma is a common psychological consequence of chronic diseases, including epilepsy; however, little research has been done to determine the effect of stigma on persons with epilepsy, especially the elderly. We interviewed 57 older adults with epilepsy to discover the extent and consequences of, and reasons for, epilepsy-related stigma in their lives. Felt stigma was more frequently reported than enacted stigma, with over 70% having experienced this form of stigma. Participants described ignorance and fear of the disease as the foundation of epilepsy-related stigma. The most common response to stigmatizing events was a decrease in epilepsy disclosure to family or friends. Results from this study could inform interventions designed for elderly persons with epilepsy and their support networks, as well as educational campaigns for the general public.

Original languageEnglish (US)
Pages (from-to)108-112
Number of pages5
JournalEpilepsy and Behavior
Volume55
DOIs
StatePublished - Feb 1 2016

Keywords

  • Elderly
  • Epilepsy
  • Qualitative
  • Stigma

ASJC Scopus subject areas

  • Clinical Neurology
  • Behavioral Neuroscience
  • Neurology

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