Patient-centered outcomes research in pulmonary, critical care, and sleep medicine: An official American Thoracic Society Workshop Report

Laura C. Feemster, Howard L. Saft, Susan J. Bartlett, Sairam Parthasarathy, Teresa Barnes, Peter Calverley, J. Randall Curtis, David H. Hickam, Richard A. Mularski, David H. Au, Linda L. Chlan, Lynn F. Reinke, Colin R. Cooke, Christopher E. Cox, Jerry A. Krishnan, Eileen Rubin, Smita Shah, Donald R. Sullivan, Erin K. Kross

Research output: Contribution to journalArticle

3 Scopus citations

Abstract

Patient-centered outcomes research (PCOR) represents a paradigm shift in research methods aimed to create the body of evidence that supports clinical practice and informs health care decisions. PCOR integrates patients and other key stakeholders including family members, policy makers, clinicians, and patient advocates and advocacy groups as research partners throughout all stages of the research process. The importance of PCOR has received increased recognition, yet there is little evidence available to help guide researchers interested in the design and conduct of PCOR. In May 2014, we convened a workshop to identify key issues related to designing, conducting, and disseminating findings from PCOR studies. Workshop participants included a diverse group of patients, patient advocates, clinicians (physicians, nurses, psychologists, and advanced practice providers), researchers, administrators, and funders within and beyond the pulmonary, critical care, and sleep medicine communities. Participants identified important issues and considerations to address when undertaking PCOR. In this report, we summarize the results of this workshop to inform members of the pulmonary, sleep, and critical care community interested in participating in PCOR. Key findings include the following: 1) requirements for research to be considered PCOR; 2) the potential significant impact of PCOR on patients, clinicians, and researchers; 3) guiding principles and practical strategies to form successful patient-centered research partnerships, conduct PCOR, and disseminate study results to a broad audience of stakeholders; 4) benefits and challenges of PCOR for researchers; and 5) resources available within the American Thoracic Society to help with the conduct of PCOR.

Original languageEnglish (US)
Pages (from-to)1005-1015
Number of pages11
JournalAnnals of the American Thoracic Society
Volume15
Issue number9
DOIs
StatePublished - Sep 1 2018

Keywords

  • Critical care
  • Patient-centered outcomes research
  • Pulmonary medicine
  • Sleep medicine

ASJC Scopus subject areas

  • Pulmonary and Respiratory Medicine

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    Feemster, L. C., Saft, H. L., Bartlett, S. J., Parthasarathy, S., Barnes, T., Calverley, P., Curtis, J. R., Hickam, D. H., Mularski, R. A., Au, D. H., Chlan, L. L., Reinke, L. F., Cooke, C. R., Cox, C. E., Krishnan, J. A., Rubin, E., Shah, S., Sullivan, D. R., & Kross, E. K. (2018). Patient-centered outcomes research in pulmonary, critical care, and sleep medicine: An official American Thoracic Society Workshop Report. Annals of the American Thoracic Society, 15(9), 1005-1015. https://doi.org/10.1513/AnnalsATS.201806-406WS