Predictors of ascertainment of autism spectrum disorders across nine us communities

Sydney Pettygrove, Judith Pinborough-Zimmerman, F. John Meaney, Kim Van Naarden Braun, Joyce Nicholas, Lisa Miller, Judith Miller, Catherine Rice

Research output: Contribution to journalArticle

11 Scopus citations


Autism spectrum disorders (ASD) prevalence estimates derived from a single data source under-identify children and provide a biased profile of case characteristics. We analyzed characteristics of 1,919 children with ASD identified by the Autism and Developmental Disabilities Monitoring Network. Cases ascertained only at education sources were compared to those identified at health sources. 38 % were education-only. These were older at their earliest evaluation (54.5 vs. 42.0 months, p < 0.001) and earliest ASD diagnosis (62 vs. 53 months, p < 0.001). More lived in census blocks with lower adult education (p < 0.001). Lower educational attainment of adults in census blocks of residence of education-only cases suggests disparities in access to clinical services with the schools providing crucial services to many families.

Original languageEnglish (US)
Article number1732
Pages (from-to)1867-1879
Number of pages13
JournalJournal of Autism and Developmental Disorders
Issue number8
StatePublished - Aug 1 2013


  • Autism spectrum disorders
  • Education
  • Epidemiology
  • Intellectual disability
  • Methods
  • Surveillance

ASJC Scopus subject areas

  • Developmental and Educational Psychology

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    Pettygrove, S., Pinborough-Zimmerman, J., John Meaney, F., Van Naarden Braun, K., Nicholas, J., Miller, L., Miller, J., & Rice, C. (2013). Predictors of ascertainment of autism spectrum disorders across nine us communities. Journal of Autism and Developmental Disorders, 43(8), 1867-1879. [1732].