Structure and functions of pediatric aerodigestive programs: A consensus statement

R. Paul Boesch, Karthik Balakrishnan, Sari Acra, Dan T. Benscoter, Shelagh A. Cofer, Joseph M. Collaco, John P. Dahl, Cori L. Daines, Alessandro Dealarcon, Emily M. Deboer, Robin R. Deterding, Joel A. Friedlander, Benjamin D. Gold, Rayna M. Grothe, Catherine K. Hart, Mikhail Kazachkov, Maureen A. Lefton-Greif, Claire Kane Miller, Paul E. Moore, Scott PentiukStacey Peterson-Carmichael, Joseph Piccione, Jeremy D. Prager, Philip E. Putnam, Rachel Rosen, Michael J. Rutter, Matthew J. Ryan, Margaret L. Skinner, Cherie Torres-Silva, Christopher T. Wootten, Karen B. Zur, Robin T. Cotton, Robert E. Wood

Research output: Contribution to journalArticlepeer-review

13 Scopus citations

Abstract

Aerodigestive programs provide coordinated interdisciplinary care to pediatric patients with complex congenital or acquired conditions affecting breathing, swallowing, and growth. Although there has been a proliferation of programs, as well as national meetings, interest groups and early research activity, there is, as of yet, no consensus definition of an aerodigestive patient, standardized structure, and functions of an aerodigestive program or a blueprint for research prioritization. The Delphi method was used by a multidisciplinary and multi-institutional panel of aerodigestive providers to obtain consensus on 4 broad content areas related to aerodigestive care: (1) definition of an aerodigestive patient, (2) essential construct and functions of an aerodigestive program, (3) identification of aerodigestive research priorities, and (4) evaluation and recognition of aerodigestive programs and future directions. After 3 iterations of survey, consensus was obtained by either a supermajority of 75% or stability in median ranking on 33 of 36 items. This included a standard definition of an aerodigestive patient, level of participation of specific pediatric disciplines in a program, essential components of the care cycle and functions of the program, feeding and swallowing assessment and therapy, procedural scope and volume, research priorities and outcome measures, certification, coding, and funding. We propose the first consensus definition of the aerodigestive care model with specific recommendations regarding associated personnel, infrastructure, research, and outcome measures. We hope that this may provide an initial framework to further standardize care, develop clinical guidelines, and improve outcomes for aerodigestive patients.

Original languageEnglish (US)
Article numbere20171701
JournalPediatrics
Volume141
Issue number3
DOIs
StatePublished - Mar 2018

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

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