The care of my child with cancer

A new instrument to measure caregiving demand in parents of children with cancer

Diane Keegan Wells, Kelly James, Janet L. Stewart, Ida M Moore, Katherine Patterson Kelly, Barbara Moore, Dana Bond, Joy Diamond, Brenda Hall, Rosemary Mahan, Lona Roll, Beth Speckhart

Research output: Contribution to journalArticle

27 Citations (Scopus)

Abstract

The growing societal trend toward delivering more and more illness-related care in the home, driven both by family preferences and by mandates from third-party reimbursers, places additional responsibilities for increasingly complex caregiving on parents of children with serious illness. This article reports on the development and initial field test of The Care of My Child with Cancer, a caregiving demand instrument specific to the childhood cancer population. The instrument demonstrated strong internal consistency and test-retest reliability, and exploratory factor analysis provided initial evidence for the instrument's construct validity. The instrument will now be applied in a collaborative program of nursing research to further investigate caregiving demand and ultimately to develop nursing interventions to maximize medical and quality of life outcomes for children with cancer and their families.

Original languageEnglish (US)
Pages (from-to)201-210
Number of pages10
JournalJournal of Pediatric Nursing
Volume17
Issue number3
DOIs
StatePublished - 2002
Externally publishedYes

Fingerprint

Child Care
Parents
Neoplasms
Nursing Research
Home Care Services
Reproducibility of Results
Statistical Factor Analysis
Nursing
Quality of Life
Population

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Nursing(all)

Cite this

The care of my child with cancer : A new instrument to measure caregiving demand in parents of children with cancer. / Wells, Diane Keegan; James, Kelly; Stewart, Janet L.; Moore, Ida M; Kelly, Katherine Patterson; Moore, Barbara; Bond, Dana; Diamond, Joy; Hall, Brenda; Mahan, Rosemary; Roll, Lona; Speckhart, Beth.

In: Journal of Pediatric Nursing, Vol. 17, No. 3, 2002, p. 201-210.

Research output: Contribution to journalArticle

Wells, DK, James, K, Stewart, JL, Moore, IM, Kelly, KP, Moore, B, Bond, D, Diamond, J, Hall, B, Mahan, R, Roll, L & Speckhart, B 2002, 'The care of my child with cancer: A new instrument to measure caregiving demand in parents of children with cancer', Journal of Pediatric Nursing, vol. 17, no. 3, pp. 201-210. https://doi.org/10.1053/jpdn.2002.124113
Wells, Diane Keegan ; James, Kelly ; Stewart, Janet L. ; Moore, Ida M ; Kelly, Katherine Patterson ; Moore, Barbara ; Bond, Dana ; Diamond, Joy ; Hall, Brenda ; Mahan, Rosemary ; Roll, Lona ; Speckhart, Beth. / The care of my child with cancer : A new instrument to measure caregiving demand in parents of children with cancer. In: Journal of Pediatric Nursing. 2002 ; Vol. 17, No. 3. pp. 201-210.
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