The greatest challenges reported by long-term colorectal cancer survivors with stomas

Carmit K. McMullen, Mark C. Hornbrook, Marcia Grant, Carol M. Baldwin, Christopher S. Wendel, M. Jane Mohler, Andrea Altschuler, Michelle Ramirez, Robert S. Krouse

Research output: Contribution to journalArticle

54 Scopus citations

Abstract

This paper presents a qualitative analysis of the greatest challenges reported by long-term colorectal cancer survivors with ostomies. Surveys that included an open-ended question about challenges of living with an ostomy were administered at three Kaiser Permanente regions: Northern California, Northwest, and Hawaii. The study was coordinated at the Southern Arizona Veterans Affairs Health Care System in Tucson. The City of Hope Quality of Life Model for Ostomy Patients provided a framework for the study's design, measures, data collection, and data analysis. The study's findings may be generalized broadly to community settings across the United States. Results replicate those of previous research among veterans, California members of the United Ostomy Association, Koreans with ostomies, and colorectal cancer survivors with ostomies residing in the United Kingdom. The greatest challenges reported by 178 colorectal cancer survivors with ostomies confirmed the Institute of Medicine's findings that survivorship is a distinct, chronic phase of cancer care and that cancer's effects are broad and pervasive. The challenges reported by study participants should inform the design, testing and integration of targeted education, early interventions, and ongoing support services for colorectal cancer patients with ostomies.

Original languageEnglish (US)
Pages (from-to)175-182
Number of pages8
JournalJournal of Supportive Oncology
Volume6
Issue number4
StatePublished - Apr 2008

ASJC Scopus subject areas

  • Oncology
  • Pharmacology (medical)

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    McMullen, C. K., Hornbrook, M. C., Grant, M., Baldwin, C. M., Wendel, C. S., Mohler, M. J., Altschuler, A., Ramirez, M., & Krouse, R. S. (2008). The greatest challenges reported by long-term colorectal cancer survivors with stomas. Journal of Supportive Oncology, 6(4), 175-182.