Unveiling SEER-CAHPS®

A New Data Resource for Quality of Care Research

Neetu Chawla, Matthew Urato, Anita Ambs, Nicola Schussler, Ron D. Hays, Steven B. Clauser, Alan M. Zaslavsky, Kayo Walsh, Margot Schwartz, Michael Halpern, Sarah Gaillot, Elizabeth H. Goldstein, Neeraj K. Arora

Research output: Contribution to journalArticle

15 Citations (Scopus)

Abstract

OBJECTIVE: To describe a new resource for quality of care research based on a linkage between the Medicare Consumer Assessment of Healthcare Providers and Systems (CAHPS®) patient surveys and the NCI’s Surveillance, Epidemiology and End Results (SEER) data.

BACKGROUND: Since 1990, the National Cancer Institute (NCI) and Centers for Medicare and Medicaid Services (CMS) have collaborated to create linked data resources to improve our understanding of patterns of care, health care costs, and trends in utilization. However, existing data linkages have not included measures of patient experiences with care.

DESIGN: This is an observational study of CAHPS respondents and includes both fee-for-service and Medicare Advantage beneficiaries with and without cancer. The data linkage includes: CAHPS survey data collected between 1998 and 2010 to assess patient reports on multiple aspects of their care, such as access to needed and timely care, doctor communication, as well as patients’ global ratings of their personal doctor, specialists, overall health care, and their health plan; SEER registry data (1973–2007) on cancer site, stage, treatment, death information, and patient demographics; and longitudinal Medicare claims data (2002–2011) for fee-for-service beneficiaries on utilization and costs of care.

PARTICIPANTS: In total, 150,750 respondents were in the cancer cohort and 571,318 were in the non-cancer cohort.

MAIN MEASURES: The data linkage includes SEER data on cancer site, stage, treatment, death information, and patient demographics, in addition to longitudinal data from Medicare claims and information on patient experiences from CAHPS surveys.

CONCLUSIONS: SEER-CAHPS is a valuable resource for information about Medicare beneficiaries’ experiences of care across different diagnoses and treatment modalities, and enables comparisons by type of insurance.

KEY RESULTS: Sizable proportions of cases from common cancers (e.g., breast, colorectal, prostate) and short-term survival cancers (e.g., pancreas) by time since diagnosis enable comparisons across the cancer care trajectory by MA vs. FFS coverage.

Original languageEnglish (US)
Pages (from-to)641-650
Number of pages10
JournalJournal of General Internal Medicine
Volume30
Issue number5
DOIs
StatePublished - May 1 2015
Externally publishedYes

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Quality of Health Care
Health Personnel
Epidemiology
Delivery of Health Care
Medicare
Research
Information Storage and Retrieval
Fee-for-Service Plans
Neoplasms
Medicare Part C
Demography
Centers for Medicare and Medicaid Services (U.S.)
National Cancer Institute (U.S.)
Data Accuracy
Insurance
Pancreatic Neoplasms
Health Care Costs
Observational Studies
Registries
Prostate

Keywords

  • CAHPS
  • cancer
  • chronic disease
  • data linkage
  • Medicare claims
  • patient experiences
  • quality of care
  • SEER registry

ASJC Scopus subject areas

  • Internal Medicine

Cite this

Chawla, N., Urato, M., Ambs, A., Schussler, N., Hays, R. D., Clauser, S. B., ... Arora, N. K. (2015). Unveiling SEER-CAHPS®: A New Data Resource for Quality of Care Research. Journal of General Internal Medicine, 30(5), 641-650. https://doi.org/10.1007/s11606-014-3162-9

Unveiling SEER-CAHPS® : A New Data Resource for Quality of Care Research. / Chawla, Neetu; Urato, Matthew; Ambs, Anita; Schussler, Nicola; Hays, Ron D.; Clauser, Steven B.; Zaslavsky, Alan M.; Walsh, Kayo; Schwartz, Margot; Halpern, Michael; Gaillot, Sarah; Goldstein, Elizabeth H.; Arora, Neeraj K.

In: Journal of General Internal Medicine, Vol. 30, No. 5, 01.05.2015, p. 641-650.

Research output: Contribution to journalArticle

Chawla, N, Urato, M, Ambs, A, Schussler, N, Hays, RD, Clauser, SB, Zaslavsky, AM, Walsh, K, Schwartz, M, Halpern, M, Gaillot, S, Goldstein, EH & Arora, NK 2015, 'Unveiling SEER-CAHPS®: A New Data Resource for Quality of Care Research', Journal of General Internal Medicine, vol. 30, no. 5, pp. 641-650. https://doi.org/10.1007/s11606-014-3162-9
Chawla, Neetu ; Urato, Matthew ; Ambs, Anita ; Schussler, Nicola ; Hays, Ron D. ; Clauser, Steven B. ; Zaslavsky, Alan M. ; Walsh, Kayo ; Schwartz, Margot ; Halpern, Michael ; Gaillot, Sarah ; Goldstein, Elizabeth H. ; Arora, Neeraj K. / Unveiling SEER-CAHPS® : A New Data Resource for Quality of Care Research. In: Journal of General Internal Medicine. 2015 ; Vol. 30, No. 5. pp. 641-650.
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