Well-being, Self-transcendence, and Resilience of Parental Caregivers of Children in Active Cancer Treatment: Where Do We Go from Here?

Jouhayna Bajjani-Gebara, Pamela Hinds, Kathleen Insel, Pamela Reed, Ki Moore, Terry Badger

Research output: Contribution to journalArticle

Abstract

Background Childhood cancer profoundly impacts the well-being of many parental caregivers in the United States yearly. Empirical evidence is extensive for negative well-being and scarce for positive well-being in this population. Objective Study aims were to (1) describe resilience, self-transcendence, and positive (general well-being) and negative well-being (depression and anxiety); (2) examine if caregiver-related personal factors (resilience and/or demographic characteristics) and/or child-related contextual factors (child's cancer and/or demographic characteristics) are associated with well-being; and (3) test if self-transcendence mediates the relationship between resilience and well-being. Methods A cross-sectional study whereby 80 caregivers of children diagnosed with childhood cancer for at least 2 months completed study questionnaires. Descriptive statistics explored sample demographics, well-being, self-transcendence, and resilience levels. Bivariate correlations examined factors associated with well-being. One-way analysis of variance and independent-samples t tests explored differences in well-being across levels of independent variables. Baron and Kenny's mediation analysis tested if self-transcendence mediated the relationship between resilience and well-being. Results Positive well-being and negative well-being coexist in parental caregivers. No child-related contextual factors related to caregivers' well-being. Parental caregivers' resilience and self-transcendence positively related to their general well-being and negatively related to their depression and anxiety. Satisfaction with current financial status positively related to general well-being and negatively related to depression. Self-transcendence mediated the relationship between resilience and well-being. Conclusions Findings confirm the importance of focusing on both positive and negative well-being, their associated factors, and mediators. Implications for practice The authors discuss practice implications to enhance self-transcendence such as journaling, mindfulness techniques, activities to connect with nature, and others.

Original languageEnglish (US)
Pages (from-to)E41-E52
JournalCancer nursing
Volume42
Issue number5
DOIs
StatePublished - Sep 1 2019

Keywords

  • Anxiety
  • Caregivers
  • Depression
  • Mediator
  • Oncology nursing
  • Parents
  • Pediatric cancer
  • Self-transcendence
  • Well-being

ASJC Scopus subject areas

  • Oncology
  • Oncology(nursing)

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